Tag Archives: fibromyalgia

Sleep – What’s that?!

22 Dec

I went to bed at around 11pm last night, shortly after hubby, but I didn’t feel sleepy so I read for a couple of hours, then I snuggled down, closed my eyes, and willed sleep to come – ha! who was I kidding?!  I rarely get to sleep before 3am, and I never nap during Continue reading

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Fibromyalgia is my Barometer

2 Oct

I got up this morning and found my normal morning stiffness was worse than usual.  Added to that was extra pain in my right knee, pain in my left hip, my lower back, and my right upper arm and shoulder.

The weather today has changed to very definitely Autumnal.  It’s windy, and it started to rain in the early afternoon.  It’s a thoroughly miserable day outside.

Roll on Springtime!

Fibromyalgia finding; Study finds evidence of nerve damage in around half of patients

1 Aug

Fibromyalgia finding; Study finds evidence of nerve damage in around half of patients.

Bill of Rights

30 Mar

For months now, I’ve been lying in bed unable to sleep, thinking of various different things that I could put on this blog.  Why has it taken me so long to get round to actually posting?  Various reasons I suppose, but the main one being prevarication!

So what got me to write this post?  I got inspired.  Inspired by a fellow Fibro sufferer who blogs.  So many things she said in this post just made me feel energised and wanting to post.  When she gave herself permission to sleep, it reminded me of something my Psychologist gave me when I was seeing her a few years ago.  I’d like to share it with you now.

“Bill of Rights”

  1. I have the right to express my feelings, opinions and beliefs. Continue reading

Withdrawal Effects from Prescribed Meds

1 Jun

Why do doctors never tell us, that the medication they’re prescribing, can have awful withdrawal symptoms?  These symptoms are also not on the Patient Information Leaflet, which comes in the packaging with the medication.  The P.I.L. tells you about any side effects you might get when taking the medication, so why not the same for withdrawal?

I was prescribed Zamadol SR 100mg for Fibromyalgia and Endometriosis pain by my G.P.  I had to take one capsule twice a day for 28 days, which I did.  The day after I stopped taking them, I felt terrible with ‘flu like symptoms.  But much worse than that, was the feeling in my legs and arms, like there was something crawling on my skin.  This feeling made me want to keep moving my arms and legs all the time, to try and alleviate the sensation.  I suppose it was a bit like Restless Leg Syndrome.  As soon as I relaxed, it started.  It was bad enough during the day, but nighttime was much worse.  Have you tried to sleep, when all you feel like doing, is move your legs and arms to get rid of the feeling of something crawling about on you?  It’s not easy, let me tell you, and I was almost in tears with it, it was so bad.

So that next time I see my G.P., I’ll suggest to him that he advise his patients of any negatives, on taking the medication he would like to prescribe, so that his patients know what to expect, and can ask for something else, which doesn’t have as many awful side and/or withdrawal effects.

Fibromyalgia, Endometriosis and Depression – Invisible Illnesses

12 Feb
I’ve been very lax with my blog.  I’m not going to make any promises to post daily or weekly, but I’m going try and make at least one post each month. . .
 
 

I woke up this morning, at about 5am, with a sore back and sore left shoulder, so it looks like the memory foam mattress, that we got a couple of weeks ago, isn’t going to help with the fibromyalgia after all.  The pain got gradually worse, and then the endometriosis decided to join in.  I am so sick of being in pain every day, and I mean every day. Continue reading

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